"I'd rather just assume that thank you!"

Neil Baxter 29/07/10 Dignity Champions forum

I'm sure some of you will know EXACTLY what I'm referring too here - 'Capacity'.

Although iit's not easy, I've had to challenge a lot of views that the equation "Cognitive Impairment, plus an opinion equals zero capacity" - i.e. the assumption that if someone 'has dementia', it's in their 'best interest' for someone to decide what they need (of course, we can 'ask' them later, which will be 'tell' really).

As part of my role in hospital, I always let people know that '24 hour care' is the LAST thing on the cards... wherever possible, a return home with support to a level that can help the Person with cognitive impairment live as independently/be given as much choice and control over his/her own needs is paramount. SO if someone 'decides' that 24 hour care is needed, then there's a raft of assessments needed before that... most importantly of all, asking the person what THEY want!

So - I ALWAYS assume anyone I meet has 'capactiy' until there's anything to suggest otherwise - and that 'capacity' is assessed on a decision specific issue - it's not like a 'passport' that you can keep using and covers everything and never runs out.

Sorry if I'm rambling here, but it's something I'm passionate about - what are your views?

Neil.

Post a reply

Old forum user 04/08/10

When I first read the title, I felt it was a bit off putting, but curiosity got the better of me and I read your comments.
I found then very interesting and I agree with everything you've said, never loss that passion.
sybil

Neil Baxter 05/08/10

Thanks Sybil - appreciated.

:)

Neil.

nicola reynolds 27/08/10

Oh I SO agree!

As a previous manager of residential care serives for people with dementia I used to get really frustrated with the families of potential residents who would say "Of course, Mum cant possibly go home".........................I also used to rapidly become the most unpopular person on the planet when I used to assess in hospital and suggest that the resident had a trial at home to see how they faired before any further options were discussed (*note the use of the word 'option' rather than decision'!).

I always tell everyone I meet in my job now (as a Community Care Practitioner) that I work from the base that I look for what I have in common with others, rather than what sets me apart, and just because some cognitive impariment may be present it doesnt mean that a person is incapable of making informed decisions........maybe just a few unwise ones from time to time........................and let's face it, we all make those (*sighs as she considers the new pair of size 12 jeans that hang in the wardrobe that she purchased with the intention of slimming into*)

Im just about to embark upon a whole load of reviews for customers who have an LD to encourage them to consider taking up a Direct Payment to purchase the kind of care and support that will suit them....................rather than being told by family,social services etc what is best for them.

I expect to receive an awful lot of flack from some quarters as, as well as being and exciting and empowering prospect for some; for others and their carers it will be an uncertain and maybe even unwelcome interuption to routine and the 'norm'.